Trying to get people interested in any charity event is sometimes like pulling teeth.i'm trying really hard to get enough people interested in a dinner/dance thing in aid of Cystic Fibrosis but have not had much luck so far.
It's been quite a sad time for the CF community as a few people have passed away.i find it very hard to deal with at times and tend to take a back seat for a while until I feel strong enough to cope with stuff again.
Jasmine has spent the morning running around like a loon and playing with a half dead fly on the bathroom floor. We have some blackbirds nesting in our garden and Jasmine has found their nest to the shock of the birds.jasmine sits for ages watching them before trying to grab them( all atempts have failed so far) but the other night the blackbird got it's own back by attacking Jasmine and chasing after her round the garden. now everytime Jasmine goes out to the nest she gets pecked on the back by these poor little birds trying to protect their nest.

Long time no post

It's been a while since i wrote on here mainly because there's not been much to tell.
My Dad has finished his Chemo and is doing really well.He still needs to go to the hospital for clinic visits and blood tests but other than that the doctors are really pleased with him.
my dear friend patrick died at the beginning of March after a long battle with CF.I felt like my world had ended as he was the last of my dear friends that I had made from many years back.Nowadays CF's are not allowed to mix due to cross infection so those kind of friendship's are few and far between.
My eye sight is failing again after I had a huge bleed in my right eye, it was very frightening but I kind of got use to this huge tadpole floating around my line of vision, I guess I was lucky that it happened in my right eye as I can't see much out of that one.I have noticed in the last few day's that my good eye has had some little bleeds so maybe felix my white cain will need to come out of the loft.
I've had two cataract operations and was blind for a few months because of them that's why i have felix( I named it that as you use the stick to feel your way about).
R bought another motorbike and I hope I can get a photo on here for you to look at( forgive me if it doesn't work)
Jasmine has been well and didn't go to the last cat show due to the death of the lady who ran the show.It was a real shock to the whole cat show world.
Keeping up to form Jasmine has been trying to catch the fat bird that keep's comming into the garden, as yet she still hasn't got him but has wacked it with her paw.God help the poor thing if she does catch him.
A few day's a go I thought Jasmine had eaten a bird, I later found out that the feathers in the garden were from r's feather pillow which had a hole in it.
I'm trying to put together a charity event in aid of CF.It will be a dinner dance thing but it's in the early stages at the moment

Well it's been a really lovely day today so I hope the Easter weekend stay's fine as trudy ( my bike) has smelt the fine weather and wants to go out and play!

Also one pink stripy cat ( Bagpuss) wants to go out too after being locked away during the cold winter months.
Jasmine has been like a spring lamb playing in the garden and running around as fast as she can, she's been meowing and purring like mad so I guess she's just happy.
My dad is going for another scan on Thursday and from that the doctor's will see if he needs more chemo, his done really well and i thank my dear friend Emma for her love and understanding when I needed someone to talk to
something else that needs a smile is that Emily is doing really well and was on GMTV this morning( sadly I missed her)
We are now selling the CF jewellery in Australia with the money raised going to the trust over there, my plan for world domination is being put into place( Ohh ha ha ha, evil laugh)
to all of you who have read my waffle have a great easter and don't eat too much chocolate!

Hello everyone
So sorry for not writing again for ages but I've been unwell and busy with the sale of the new CF jewellery.
my dad is doing really well and maybe only needs a few more chemo sessions which is fantastic news.My other fantastic news is that Emily my CF friend was able to go home last weekend after her transplant, she was able to celebrate her birthday at home, so this birthday will have been a very special one for Emily and her family.
Jasmine has been very lazy and not really been a monkey like normal.The one thing she did yesterday was fall off the window ledge after falling asleep there. She's also started to snore like a piglet when she goes into a deep sleep.
All things spider like have been safe from the mad moggie as they don't tend to come in any more, I wonder why?
Woodlice are at danger though crossing the hall carpet as Jasmine likes to play with them and then eats them, poor little things.
i thought Jasmine had killed a bird in the garden a few weeks ago as i'd found a load of feathers on the grass.I later found out that R had thrown a feather pillow out and these were what I'd found.I was kind of pleased that my mad gray moggie hadn't murdered a bird.
So life is looking good and I'm now looking forward to summer evenings out on the motorbike and that feeling of freedom!

yet again I find myself saying sorry for the lack of posts, I've not been well and have been fighting a really horrible cold which was kindly given to me after a clinic visit to hospital.
The fantastic news is that Emily has had all the tubes and machines taken away and is using her new lungs all by her self.This is such fantastic news i can't tell you how everyone feels in the wonderful world of CF. There was of course for a time many of us were preparing to hear the worst news about emily but someone gave her that gift and they have saved her life.
Since the live life then give life campaign started i think more people are understanding just how important carring a donor card is and making sure your loved ones know your wishes, and i'm so proud of Emma and Emily for starting the campaign and the work they do.
My Dad is doing really well. He had a scan two weeks ago to see if the chemo was working on shrinking the cancer and it's doing the job on one of the tumours but he still needs the chemo to help shrink the other tumours. The doctors are very pleased with my Dad and think he'll come through this very well and have no more cancer, fingers crossed.
My kidneys have been giving me some pain. I've been gathering information on dialysis as I know that it's going to happen sometime, so I might as well get my thoughts together and get on with it.
Jasmine is well and her painting came and is in the front room above the fire. She's been sleeping alot while it's been cold and wet, but today it's beautiful sunshine and warm so she's been in and out of the house all morning. No doubt Jasmine will be watching the fat wood pigeons that land on our garden table, what she's going to do with it is a different thought altogether as she's never killed anything before like a bird only spiders and daddy longlegs!

Sorry for the lack in posts but I've been unwell.
We launched the new line of CF jewellery last week and so far it all seems to be selling well.
Anyone who is interested in buying any of our jewellery should take a look at www.susies-jewellery.com and follow the CF link.

My kidney's have been giving me more problems and last week I was told at the renal unit that my kidney function has gone down to 20% which isn't great news as dialysis is coming up fairly fast on the horizen.

I've cought another dam cold and do nothing but sneeze, I'm sure I'm falling apart!
Jasmine has found a new sport, she tries to flick woodlice with her paws. It's funny watching what this mad moggie get's up to and I have started a video dairy of her and her little games. Katcam seems to be the best way of catching her up to naughty things. One of the funniest things so far is finding Jasmine sitting in the bathroom sink with her face up against the drippy tap.
My Dad is doing really well and has lost all his hair now. He went back to work this week after being away since November and money was getting a bit tight.
The good news was at the beginning of the new year, my friend Emily got her double lung transplant and is fighting hard to get better.It will be a long process but if anyone can come through such a huge op , it's our Miss Thackray. Both Emily and Emma are always in my thought's as they are such a huge inspiration to many of the CF world.
Nothing dead brill has been happening to me but I thought I better write on here as I hadn't done it in a while.

I had a very busy day yesterday as I was at the renal unit in Leeds for my check up. My appointment wasn't until 2.30pm but transport came at 11.45am. I always get nervous about clinics, I've been like that since I was a kid, I think it's because the news is never good.
I had to wait an hour and a half before seeing the doctor and as I thought the news wasn't great. I've been going to the renal unit for nearly three years and when I first went there my kidney function was 40%, sadly it's been going downhill ever since even though it's been a slow progress. My kidney function is now down to 20% any lower then I have to go to the low cleansing unit( dialysis) which I knew would happen one day but it's still a shock.
my sister rang me as soon as I got home ( by that time it was 6pm) I wasn't going to tell her but somehow couldn't help myself. Now most people would support someone if they heard my kind of news but not my sister, she was telling me that R was no good for me and non supportive and selfish, which was uncalled for and not really what I wanted to hear. I love my sister dearly but since she got married she's changed and talks down to me.
Today is another day and it's brilliant sunshine! Jasmine has been running around the house like a manic thing, I think she's in training to do the marathon!
I'm feeling very tired and worn out, I didn't sleep too well with a thousand things going round in my noggin. I keep thinking of my friend Emily, and wondered how she coped with all the things that have happened to hear. I get strength from people like Emily, it doesn't seem to matter what life throws at them they seem to bounce back always with a smile for you, I just wish i was as brave, I'm a huge sugarpuff when it comes to needles, doctors and so on even though it's been most of my life but I've never got use to it.
On a much brighter note I got a signed photo from Johnny Depp, which made my day, I sent him a letter a month ago and told him about my CF bracelets and Emily and Emma's live life then give life campaign I didn't get a letter but at least i've got a photo!